tag:blogger.com,1999:blog-3265009737359661353.post6389899324346539397..comments2023-10-01T05:52:03.758-04:00Comments on Where do we go from here.....: October 1Meghanhttp://www.blogger.com/profile/15525601797993137270noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-3265009737359661353.post-80663249083423525642011-10-11T23:14:50.266-04:002011-10-11T23:14:50.266-04:00I hear you sister. Loud and clear.
It took me a l...I hear you sister. Loud and clear.<br /><br />It took me a long time to be able to let go of the guilt that there was something I could have done to change what happened. I think it's part of the bargaining process of grief in a way--but in the end, no matter if you would have worried or prayed more, the decision was already made. I'm so sorry that you're on the bad end of an awful statistic.<br /><br />xoxo, Meghan OAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-3265009737359661353.post-25687996849864850582011-10-04T23:37:21.997-04:002011-10-04T23:37:21.997-04:00Oh, I see! I just didn't want you to worry ab...Oh, I see! I just didn't want you to worry about anything else more than you already worry about. God bless tomorrow on your ultrasound. We check back often to see how you are doing and look forward to seeing Quinn born safe and sound.Joe and Maricelnoreply@blogger.comtag:blogger.com,1999:blog-3265009737359661353.post-36767330874495701722011-10-02T20:32:20.483-04:002011-10-02T20:32:20.483-04:00Hi Joe and Maricel. Thank you for the comment and...Hi Joe and Maricel. Thank you for the comment and for reading my blog! I just wanted to clarify that when I said we were told we were high risk for Down Syndrom that this was prior to our diagnosis of T13. We were informed that we were high risk for DS due to our NT scan. We did NOT show any signs of being high risk for Trisomy 13 / 18 at that time. When we found out about the increased risk for DS we declined the amnio but agreed to have a level 2 ultrasound at 20 weeks. It was here that we were advised that we were most likly having a T13/18 baby and then decided to have the amnio to confirm.<br /><br />I am so glad to hear that Troy is doing so well. I pray that we are as blessed with Quinn as you have been with your Troy.Meghanhttps://www.blogger.com/profile/15525601797993137270noreply@blogger.comtag:blogger.com,1999:blog-3265009737359661353.post-57736262929807044122011-10-02T15:12:02.982-04:002011-10-02T15:12:02.982-04:00We felt a lot like you. Wondering what we could h...We felt a lot like you. Wondering what we could have done. Maricel worried that she worked for too long. I worried that something we did, ate wrong, exposure to chemicals or whatever that caused this. Maricel asked me, "I prayed every day that our baby would be healthy and normal," so how did this happen? But then it finally dawned on me. This happened at the moment of conception. All those things we worried we did wrong would have had no effect because Trisomy 13 happened those first few seconds of conception. There's nothing you could have done to change anything after that. <br /><br />One thing you should understand. Down Syndrome is a triple chromosome 21, similar to Trisomy 13, but a completely different chromosome disorder. Quinn's not going to have both. Most likely they have warned you that Trisomy 13 babies are at risk for mental or physical retardation. It's not quite the same thing as Down Syndrome. 85% that have retardation can function and live on their own. They will not have the physical characteristics of Down Syndrome. Trust me, I worried about the same thing, but you'll quickly learn that mostly what those doctors are saying is that it could take your baby longer to walk or crawl than normal, or have a lower IQ. They told us the same thing with Troy. In our case, he seems to be taking 1 month longer for physical stuff, but mentally is passing all goals, despite being high risk.<br /><br />Don't worry, be happy :) <br /><br />With love,<br />Joe and MaricelJoe and Maricelnoreply@blogger.com